NATIONAL CANCER INSTITUTE

IRCCS “GIOVANNI PAOLO II”

via s. hahnemann, 10 - 70126 bari – italy

Department of Critical Area and Surgery Director,

V. Mattioli, MD

Life beyond cancer
Survivor: Person, not Patient anymore

BACKGROUND

Cancers represent the greatest problem of public health for all the industrialized Countries, Italy included. Cancer Survival, in the last years, has significatively increased and to confirm it, there are the last data relating to the Italian Cancer Registries (ICR). Cancer Survival up to five years since the diagnosis is of 45,7% in men and of 57,5% in women: a result in line with the European average that shows an improvement in the last twenties, even if we aren’t still at the United States level, which reached values of 64%.

Italian data show an increase of about 15% as regards 1985, while for the cancer survival to ten years the improvement is of about 6%.

The actual estimates indicate that in Italy the population of cancer survivors is of 1.709.000, 2,5% of the whole population with an increasing forecast to 2010 of 1.25.000(3,3%). For Region Puglia the estimate is of 70-80.000 long-term cancer survivors.

The great survivorship is due to the increased availability of efficacious therapies and to the diffusion of screening programs, even if analyzing the existing discrepancies among the rates of mortality estimated for Regions, a difference of mortality of 10% is evident. For this reason these data must be interpreted with prudence as in Italy the mortality data are systematically available both at national and regional level; the other indicators are generally available only for the interested areas by ICR, that cover about 20% of national population, with only 3 Regions out of 20, Umbria, Friuli and Trentino, Alto Adige, entirely covered by activities of registration.

These figures testify the emergency of a social, health, complex and polymorphous scenario, still less known in our Country and in Europe: Cancer Survivorship.

The studies done in the USA since the seventies, even if fragmentary at the beginning, have focused over the time an epidemiological profile for these “ex patients” who in that Country are about 10.000.000, the 3% of the whole population. Particularly important has been the cognitive and operative impulse given by the National Coalition for Cancer Survivorship (NCCS), a cancer advocacy group founded in 1986 and constituted by the same patients survived to cancer.

However only recently these knowledges have taken to a scientific literature of great importance that has as document of reference, the Report of the Institute of Medicine (IOM) and of National Research Council, published in 2006 by the National Academy of Sciences.

In the last decade the scientific contribution has considerably increased on this new subject by the most scientific American known Journals that have started to publish a great number of papers and special numbers, entirely dedicated both to the knowledge of the psychosocial and rehabilitative aspects of the long-term survivorship, and to the Continuous Formation for Doctors and Nurses. Considerable is today the contribution of the main American Medical Societies, among them the American Cancer Society and the American Society of Clinical Oncology (ASCO) with the Journal of Clinical Oncology (JCO), and Nursing among them the Oncology Nurses Society (ONS) with the American Journal of Nursing (AJN), and the International Society of Nurses in Cancer Care (ISNCC).

A substantial cognitive and operative support has also been provided by the Centers of Disease Control and Prevention (CDC) and by the Lance Armstrong Foundation.

Waiting for greater learning on the population and the problems of long-term cancer survivors in Europe and Italy, in relation with the development of PIO7 Plan too, the National Research Program of the Italian Ministry of Health, this Study Day, in spite of the cultural and of welfare differences between American and Italian welfare policy, will analyze the more recent data from the American literature about Cancer Survivorship of the aged patients, comparing them, if possible, with the reality of our Country.

PUBLIC FORUM AND INTERVIEWS

Life beyond cancer

Survivor: Person, not Patient anymore

May 6-2008

15.00 CME Participants Registration

CME Entrance Questionnaire

15.30 Cancer Survivorship: issues, barriers, challenges, and programs

Chairmen: Vittorio Mattioli, Angelo Paradiso

Welcome and Introduction

16.00 Testimony. My journey as patient, and survivor: a first-person perspective

Susan Leigh and Nicola Rondinone

16.45 Debate and Interviews

Panel: Nichi Vendola, Alberto Tedesco, Nicola Pansini,Giuseppe Colucci, Francesco Schittulli,

Pamela Haylock, Francesco De Lorenzo, Raffaella De Franco, Marilena Bongiovanni,

Rosanna Montanaro

Discussants: Silvia Godelli, Tommaso Fiore

19.30 Conclusions

MCE COURSE

Life beyond cancer

Survivor: Person, not Patient anymore

STUDY DAY ON CANCER SURVIVORS

FROM AMERICAN REPORTS TO ITALIAN PROJECT PIO7

May 7- 2008

Morning session 8.30 am

Chairmen: Giuseppe Colucci and Francesco Bruno

9.00 Survivorship: only a question of glossary? V. Mattioli

9.30 National Estimates of Cancer Patients Survival in Italy G. Colucci

10.00 Characteristics of Cancer Survivors in the U.S.A. P.J. Haylock

10.30 Coffee break

11.00 Pain, Neuropathy and others Medical Concerns of Cancer Survivors after treatment F. Giotta

11.30 Psychosocial and Cognitive Concerns of Cancer Survivors M. A. Annunziata

12.00 Introduction of Italian Project PIO7 U. Tirelli

12.30 Discussion

13.00 Lunch

Afternoon session 14.30 pm

Chairmen: Pamela J. Haylock and Vittorio Mattioli

14.40 Cancer Survivorship: a limit or a success? R. De Franco

15.10 Cancer and Sexuality: the disease becomes a resource F. De Falco

15.40 Life beyond cancer: the rights of Cancer Survivors F. De Lorenzo

16.10 Discussion

16.30 Coffee break

16.50 National Coalition for Cancer Survivorship (NCCS): the start and the progress of the

Survivorship movement in the U.S.A S. Leigh

17.20 NCI of Bari, our early experience in Cancer Survivorship: work in progress G. Bradascio,

A. Di Lella, E. Rizzo

17.50 Lecture: The Cancer Survivor’s Prescription for Living P.J. Haylock

18.30 Conclusions

18.40 CME Exit Questionnaires

Host the Study Day: Sheraton Nicolaus Hotel

Via A. Ciasca, 27 – Bari (Italy)

Phone +390805682111

FACULTY

ORGANIZATION

NATIONAL CANCER INSTITUTE IRCCS “GIOVANNI PAOLO II” Via S. Hahnemann, 10 – 70126 - BARI

website www.oncologico.bari.it

General Manager, Nicola Pansini, MD

DEPARTMENT CRITICAL AREA AND SURGERY

Director, Vittorio Mattioli, MD Phone/fax +390805555387 email v.mattioli@oncologico.bari.it

SCIENTIFIC COMMITTEE

Vittorio Mattioli

Director, Department Critical Area and Surgery, NCI IRCCS “G. Paolo II” Bari

Giuseppe Colucci

Director, Department Medical Oncology, NCI IRCCS “G. Paolo II”. Bari

Angelo Paradiso

Scientific Director, NCI IRCCS “G. Paolo II”. Bari

Umberto Tirelli

Director, Department Medical Oncology, NCI CRO. Aviano

Pamela J. Haylock

Cancer Care Consultant, and Doctoral Candidate, University of Texas Medical Branch, Galveston. USA. 

CME ORGANIZATION 

Patrizia Nardulli

IRCCS NCI “G. Paolo II”. Bari. Phone/fax +390805555141

m.longo@oncologico.bari.it,

v.ponzio@oncologico.bari.it

Marisa Longo

Vittoria Ponzio

DEPARTMENT SECRETARIAT

Cinzia Romanello

NCI IRCCS “G. Paolo II”. Bari Phone/fax +390805555384

email criticare@oncologico.bari.it

EXECUTIVE SECRETARIAT

AGORÀ

Via C. Rosalba 41/A, 70124 Bari. website www.organizzazioneagora.it

AEGIS, ENDORSEMENTS, AND ACKNOWLEDGMENTS

Ministero Italiano della Salute

Italian Ministry of Health

Presidenza Regione Puglia

President of Region Puglia

Assessorato Regione Puglia alle Politiche della Salute

Regional Councillor of Health Politics. Region Puglia

Assessorato Regione Puglia Trasparenza e Cittadinanza Attiva

Regional Councillor of Transparency and Active Citizenship. Region Puglia

Assessorato Regione Puglia alla Cultura ed al Mediterraneo

Regional Councillor of Mediterranean. Region Puglia

Associazione Italiana Oncologia Oncologica – AIOM

Italian Association of Medical Oncology

Gruppo Oncologico Italia Meridionale – GOIM

Oncology Group of Southern Italy

Mediterranean Oncology Society - MOS

Società Italiana di Psiconcologia – SIPO

Italian Society of Psychoncolgy

Società Italiana di Anestesia Analgesia Rianimazione Terapia Intensiva – SIAARTI

Italian Society of Anesthesia Analgesia Reanimation and Intensive Care

Istituto Superiore di Sanità – ISS

Italian National Institute of Health

Sbarro Health Research Organization - SHRO

Human Health Foundation - HHF

Infermieri Professionali Assistenti Sanitari e Vigilatrici d’Infanzia – IPASVI

Italian Federation of Nurses’ Colleges

Lega Italiana per la Lotta contro i Tumori - LILT

Italian League Fight Against Cancer

National Coalition for Cancer Survivorship - NCCS

Oncology Nursing Society – ONS

Ordine dei Medici Chirurghi ed Odontoiatri Provincia di Bari

Medical Register of Physicians and Dentistry. District of Bari

Circolo della Sanità di Bari

Healthcare’s Club of Bari

Federazione Associazioni Volontariato Oncologico – FAVO

Italian Federation of Voluntary Organizations in Oncology

Associazione Italiana Malati di Cancro – AIMaC

Italian Association of Cancer Patients

International Society of Nursing in Cancer Care - ISNCC

Associazione Nazionali Guariti o Lungoviventi Oncologici – ANGOLO

National Association of Cancer Cured or Long-term Survivors

CME CREDITS

The Study Day is in process of obtaining accreditation by the Italian Ministry of Health in compliance with the national CME regulations.

FEE/REGISTRATION

The participation at the CME event is free, while the registration is obliged.

Once the maximum number of participants has been reached, registration will be closed and the organizing secretariat will promptly contact those participants exceeding.

The number of participants is 60 therefore sharing out:

n.30 Oncologists/Anaesthesiologists

n.10 Psychologists

n.20 Nurses

SERVICES FOR PARTICIPANTS

During the Congress the translation will be provided from English into Italian and vice versa for the scientific sessions indicated in the program.